Forum,Winter 2011
3
Thenewsletterof theCutaneousLymphomaFoundation
ALLRIGHTSRESERVED
DESIGNER&EDITORIALDIRECTOR
AmandaL. J.Kik
MEDICALEDITOR
StuartLessin,M.D.
CutaneousLymphomaFoundation isa 501(c)(3)non-profitorganiza-
tion.Donationsare taxdeductible to theextent allowedby law.
BOARDOFDIRECTORS
MEDICALADVISORYBOARD
STAFF
Forum
ThomasAnderson,M.D.
KevinCooper,M.D.
MadeleineDuvic,M.D.
FrancineFoss,M.D.
LarsFrench,M.D.
SamHwang,M.D.,Ph.D.
RobertKnobler,M.D.
ThomasKupper,M.D.
LilianeLaroche,M.D.
StuartLessin,M.D.
SueMcCann,MSN,RN
LaurenPinter-Brown,M.D.
PierluigiPorcu,M.D.
DavidRamsay,M.D.
AlainRook,M.D.
StevenT.Rosen,M.D.
MarianneTawa,MSN,RN,ANP
MartinWeinstock,M.D.,Ph.D.
SeanWhittaker,M.D.,MRCP
LynnWilson,M.D.,MPH
UniversityofMichigan
CaseWesternReserveUniversity
MDAndersonCancerCenter
YaleUniversitySchoolofMedicine
GenevaMedicalCenter
National InstitutesofHealth
UniversityofVienna
BrighamandWomen’sHospital
UniversityofParis
FoxChaseCancerCenter
UniversityofPittsburghMedicalCenter
UCLAMedicalCenter
OhioSateUniversity
NewYorkUniversity
UniversityofPennsylvania
NorthwesternUniversity
DanaFarberCancerInstitute,Boston
BrownUniversity
Guys&St.ThomasHospital
YaleUniversitySchoolofMedicine
ClaudiaDay
JudyJones
StuartLessin,M.D.
LeoraLowenthal,LCSW,OSW-C
ChristopherShipp
SusanThornton
MichaelW.Young
JenniferViano
Director
President
Director,ChairofMedicalAdvisoryBoard
Director
VicePresidentandTreasurer
Secretary
Director
ChiefExecutiveOfficer
AmandaKik
HollyPriebe
JenniferViano
KacieWiersma
DirectorofPatientEducation
DirectorofOperationsandFinance
ChiefExecutiveOfficer
DirectorofProgramsandServices
Needs Assessment
T
heneedsof the individualswhomakeup thecutaneous
lymphomacommunityareat thecenterof all ofourprograms
andservicesat theCutaneousLymphomaFoundation.Over the
past fewmonths,Foundation leadersandstaffhavebeenworking
diligently to improveuponourprogramsandservices tomakesure
thatwearemeeting theseneedseffectively.
Recently, theFoundationhired itsfirstDirectorofPrograms
andServices tobegin improvementuponandexpansionof its
existingprograms.This is thefirstofmanysteps that theFounda-
tionwillbe taking tomakesure thatwecontinue tobringyou the
bestpossibleservice.
During thenext fewmonths, theFoundationwillundertake
aNeedsAssessment, an important initiative thatwill survey
patients, caregivers, andmedicalprofessionals in thecutaneous
lymphomacommunitygiving themanopportunity toshare their
needswithus.Through it,weaim to learnmoreaboutwhat is
most important toourpatients, caregivers, and themedicalprofes-
sionalswhocare for them.The feedbackwe receive from itwill
helpusmake importantdecisionsaboutwhat currentprograms
andservicesshould remain,whichshouldbeenhanced, andwhich
weshouldconsideradding for the future.
Participating inourNeedsAssessment isagreatopportunity
forpatients, caregivers, andmedicalprofessionals tohelpshape
the futuredirectionof theCutaneousLymphomaFoundation.
Survey informationwillbeemailedviaoure-newsletterand
listserv, and itwillbesharedonourwebsite, sowatch for those
detailscomingsoon.
Eachparticipant inourNeedsAssessmentwillbeprovided
withapost-assessment reportdetailingoutcomes from this
initiative.And, four luckypatientparticipantswill eachwina$25
gift card toTarget;moredetailsabout theneedsassessmentand
drawingwillbeshared inearly2011.
Thankyou inadvanceandwe look forward tohaving
yourparticipation.
TheCutaneous Lymphoma Foundation’s
patient educational newsletter, Forum, has
beenmadepossible thanks to the following
generous supporter:
Platinum Supporter
