NON-PROFIT
USPOSTAGEPAID
BIRMINGHAMMI
PERMIT NO 265
PO Box 374
Birmingham,
MI 48012
TIME SENSITIVEMATERIALS ENCLOSED
MillionsAround TheWorld ToObserveRareDiseaseDay
TheCutaneousLymphomaFoundationwillbe joining theNationalOrganiza-
tion forRareDisorders (NORD)andothersaround theworld inobserving
WorldRareDiseaseDayonFebruary28, 2011. On thisday,millionsofpatients
and their familieswill share their stories to focusaspotlighton rarediseasesasan
importantglobalpublichealthconcern.
A raredisease isone thataffects fewer than200,000Americans. Therearenear-
ly7,000suchdiseasesaffectingnearly30millionAmericans.Formore informa-
tionaboutRareDiseaseDayactivities in theU.S.,go towww.rarediseaseday.
us. For informationaboutglobal activities,go towww.rarediseaseday.org.
ShowYour Support!
Youcan showyour support bywearingour NEW stylish t-shirts
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Revisions toStagingand
ClassificationofMycosis Fungoides
and Sézary Syndrome
TheInternationalSociety forCutaneousLymphomas
(ISCL)and thecutaneous lymphoma task forceof the
EuropeanOrganizationofResearchandTreatment
ofCancer (EORTC) recommends revisions to the
MycosisFungoidesCooperativeGroupclassification
andstagingsystem forcutaneousT-cell lymphoma
(CTCL).These revisionsaremade to incorporate
advances related to tumorcellbiologyanddiagnostic
techniquesas itpertains tomycosis fungoides (MF)
andSezarysyndrome (SS) since the 1979publicationof
theoriginalguidelines, toclarifycertainvariables that
currently impedeeffective interinstitutionand interin-
vestigatorcommunicationand/or thedevelopmentof
standardizedclinical trials inMFandSS, and topro-
videaplatform for trackingothervariablesofpotential
prognosticsignificance.
More informationabout these revisionscanbe found
ina full article in
Blood
, asemimonthlypublicationof
theAmericanSocietyofHematology,whichhasbeen
postedon theCutaneousLymphomaFoundation
websiteatwww.clfoundation.org.
