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Resources
Receiving a diagnosis of cutaneous lymphoma can be frightening and
challenging. Whether you or someone you love is newly-diagnosed
or a long-term survivor, understanding more about the latest medical
information and accessing support services can help.
In this section you’ll find a variety of organizations that you can contact to
obtain more information, resources and support to help you along your
journey.
Cutaneous Lymphoma Foundation
The Cutaneous Lymphoma Foundation is an independent, nonprofit
patient advocacy organization dedicated to supporting every person
with cutaneous lymphoma by promoting awareness and education,
advancing patient care, and facilitating research. We exist to make sure
that each person with cutaneous lymphoma gets the best care possible.
The Cutaneous Lymphoma Foundation is the only organization
worldwide providing comprehensive programs and services for patients,
caregivers, medical professionals and others affected by cutaneous
lymphoma. Programs include our website at
Patient Educational Forums, printed/electronic educational resources
and newsletters, physician and treatment center referral network, personal
assistance via phone/email, research, advocacy and more. For more
information, visit
email
or
call 248.644.9014.
EMOTIONAL SUPPORT
CUTANEOUS LYMPHOMA-SPECIFIC EMOTIONAL SUPPORT
CTCL-MF Listserv
The CTCL-MF Listserv is an online support group hosted by the
Association of Cancer Online Resources (ACOR) for patients,
caregivers, family and friends to discuss clinical and non-clinical issues
about cutaneous lymphoma. People on the Listserv share information
on patient experiences, psychosocial issues, treatment practices, new
research and clinical trials. You can join the Listserv by visiting the
Cutaneous Lymphoma Foundation’s website at
OnlineSupport
Resources For Patients, Caregivers
And Loved Ones
