A Patient’s Guide to Understanding
Cutaneous Lymphoma
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National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a nonprofit
organization, is a unique federation of voluntary health organizations
dedicated to helping people with rare “orphan” diseases and assisting the
organizations that serve them. NORD is committed to the identification,
treatment, and cure of rare disorders through programs of education,
advocacy, research, and service. For more information, call 202.588.5700 or
visit
Patient Advocate Foundation
The Patient Advocate Foundation is a national nonprofit organization
whose mission is to provide effective mediation and arbitration services to
patients to remove obstacles to healthcare including medical debt crisis,
insurance access issues and employment issues for patients with chronic,
debilitating and life-threatening illnesses. For more information, visit www.
patientadvocate.org or contact 800.532.5274.
United Way of America
The United Way of America offers local toll-free information lines linking
people to community resources and services such as emergency housing
and food assistance. For more information and contact information on your
local office, visit
.
GOVERNMENT AGENCIES
ClinicalTrials.gov
The U.S. National Institutes of Health (NIH), through its National
Library of Medicine (NLM), has developed this site in collaboration with
the Food and Drug Administration (FDA). Clinicaltrials.gov offers up-to-
date information for locating federally and privately supported clinical trials
for a wide range of diseases and conditions. ClinicalTrials.gov contains
tens of thousands of clinical studies sponsored by the National Institutes
of Health, other federal agencies, and private industry. Studies listed in
the database are conducted throughout the United States and in over 130
countries, and searches may be conducted by diagnosis, by sponsor or by
recruitment status. ClinicalTrials.gov provides information about a trial’s
purpose, who may participate, locations, and contact information to learn
more details. In addition to providing listings, the website offers detailed
information to help the reader understand how clinical trials are structured
and governed. For more information, visit
.
