Forum, Fall 2012
3
The newsletter of the Cutaneous Lymphoma Foundation
ALL RIGHTS RESERVED
MEDICAL EDITOR
Stuart Lessin, M.D.
Cutaneous Lymphoma Foundation is a 501(c)(3) non-profit organiza-
tion. Donations are tax deductible to the extent allowed by law.
BOARD OF DIRECTORS
Forum
Thomas Anderson, M.D.
Kevin Cooper, M.D.
Madeleine Duvic, M.D.
Francine Foss, M.D.
Lars French, M.D.
SamHwang, M.D., Ph.D.
Robert Knobler, M.D.
Thomas Kupper, M.D.
Liliane Laroche, M.D.
Sue McCann, MSN, RN
Lauren Pinter-Brown, M.D.
David Ramsay, M.D.
Alain Rook, M.D.
Steven T. Rosen, M.D.
MartinWeinstock, M.D., Ph.D.
SeanWhittaker, M.D., MRCP
LynnWilson, M. D., MPH
University of Michigan
Case Western Reserve University
MD Anderson Cancer Center
Yale University School of Medicine
Geneva Medical Center
The Medical College of Wisconsin
University of Vienna
Brigham and Women’s Hospital
University of Paris
University of Pittsburgh Medical Center
UCLA Medical Center
New York University
University of Pennsylvania
Northwestern University
Brown University
Guys & St. Thomas Hospital
Yale University School of Medicine
Laurel Carlson
Joseph Eischens
Brace Krag
David Lamb
Stuart Lessin, M.D.
Pierluigi Porcu, M.D.
Christopher Shipp
Marianne Tawa, MSN, RN, ANP
Jeff Ward
Michael W. Young
Susan Thornton
Secretary
Director
Director
Director
President
Director
Director
Vice President
Treasurer
Director
Chief Executive Officer
Kira Mann
Holly Priebe
Susan Thornton
Deb Van Zegeren
Director of Development
Director of Operations and Finance
Chief Executive Officer
Office Manager
MEDICAL ADVISORY BOARD
STAFF
The Cutaneous Lymphoma Foundation’s patient
educational newsletter,
Forum
, has been
made possible thanks to the following
generous supporter:
Find Us On Facebook!
Check out the latest news and information from
the Cutaneous Lymphoma Foundation by liking
us on Facebook!
What Is Cutaneous Lymphoma?
C
utaneous lymphomas are cancers of lymphocytes
(white blood cells) that primarily involve the skin.
Classification is based on lymphocyte type: B-lymphocytes
(B-cell) or T-lymphocytes (T-cell).
Cutaneous T-cell lymphoma (CTCL) is the most
common type of cutaneous lymphoma that typically
presents with red, scaly patches or thickened plaques
of skin that often mimic eczema or chronic dermatitis.
Progression from limited skin involvement is variable
and may be accompanied by tumor formation, ulceration
and exfoliation, complicated by itching and infections.
Advanced stages are defined by involvement of lymph
nodes, peripheral blood, and internal organs.
Patient Assistance Resources
Coping with cutaneous lymphoma presents many
challenges. Patients and others contact our Foundation
often to learn about resources that are available for:
• Medication Assistance
• Financial Support
• Travel and Lodging Needs
• Legal Assistance
• Emotional Support
Visit the Patient Assistance Resources section of our
website to learn about the many valuable programs
available. If you do not have access to our website or
would like personal assistance, please contact us at info@
clfoundation.org or 248.644.9014, ext. 3.
