Forum, Fall 2012
13
Cutaneous Lymphoma Foundation Board of Directors
and Staff
Clinician Q & A Panel at the Columbus, OH
Patient Education Forum
A Year in Review:
What your donations have accomplished...
PEF Patient Panel
Rare Disease Advocacy,
FDA, Washington, DC
Your generous donations allowed the Cutaneous Lymphoma Foundation to accomplish the
following during its 2011-2012 fiscal year:
Events
• Held 8 Patient Education Forums
• Collaborated in 9 affiliated educational events
• Serve 650+ patients and caregivers through these events in 17 cities throughout the United
States and in Canada
One-To-One Support Services
• Connected with 1000+ individual patients and caregivers in person and via telephone
Medical Meetings Attended
• American Society of Hematology
• American Academy of Dermatology
• American Society of Clinical Oncologists
• Society of Investigative Dermatology
• Dermatology Nurses Association
• T-Cell Lymphoma Forum
Highlights
• Publication and distribution of “A Patient’s Guide to Understanding Cutaneous
Lymphoma”
• 3 published “Forum” newletters
• Added 5 new board members
• Addition of a director of development and an office manager to the CLF staff
• Completion of the needs assessment survey
• Increased involvement in advocacy meetings
• Increased participation with collaborative groups:
00 Coalition of Skin Diseases
00 Lymphoma Coalition
00 Canadian Patient Skin Alliance
During the Board of Director’s meeting in June, CEO Susan Thornton shared her vision for the Foundation’s continued growth
in the areas of service, programs, advocacy and research support. Expect exciting things to continue to happen in the future of the
Cutaneous Lymphoma Foundation!
