Publications
• Published
2015ResearchReport
-CLF’s first report for theCLARIONS
ResearchGrant
• Published three
Forum
newsletters and 12e-Newsletters
Advocacy
CLF Board& staff attendeda varietyof advocacymeetings andpolicy
programs inWashington, DCheld throughout the year, including two
legislative lobbydays onCapitol Hill:
• OneVoiceAgainst Cancer
-CLFwas representedby Joe Eischens,
CLF BoardPresident
• AmericanAcademyof DermatologyCaptiol Hill Day
-CLFwas
representedby staffmember, DebVan Zegeren
• CLFbecameanactivemember of the
Partnership to ImprovePatient
Care
(PIPC).
• CLF joined the
Lymphoma EducationandAdvocacyPartners
(LEAP),
theadvocacyarmof the LymphomaResearch Foundation
Collaborative Partners included:
A special “Thank You” to thebeloworganizations for their support of our efforts
and theopportunity towork together onbehalf of thosewe serve:
• CanadianPatient SkinAlliance
• Cancer
Care -
joinedwith theCLF toprovidemeeting spaceand support for
our NewYorkNetworkingGroup
• Coalitionof SkinDiseases
• International Allianceof DermatologyPatientOrganizations -CLF is a founding
member this organization
• LymphomaCoalition
• LymphomaResearch Foundation
• Patient Advocate Foundation
• Regulatory EducationandAction for Patients
• T-Cell Leukemia Lymphoma Foundation
What I foundmost helpful...
was the realization I’mnot
the only personwithCTCL.
Patient Educational ForumAttendee
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